Narcolepsy; a day with cat woman

 I call today a day with cat woman bc I had some pretty quick reflexes today. Luckily! This is how I explained it to my mom in a text : I fell into the patio door with my face,  not to hard more sloth like lol. The door slid closed. I was able to grab behind me with my right arm and grab the black chair for my ass. Then my left arm grabbed the wood chair in front of me and pulled it to me for my head and down I went. Then I was jello and was down. I continued to fall, luckily my boyfriend was in the living room. He seen me go down but thought I landed ok lol . But I yelled for him. I was squishing my lungs and stomach and it was tough to breath. (Not like this is the first time I’ve went down, so my family is becoming used to seeing me land some swan dives.😂)

Earlier in the day we went to the post office to mail a stack of papers, oh joy, I left the house. I made it thru changing envelopes and readdressing it but then came the lady ringing me up and me buying stamps. I forgot the word stamps. My mind went blank, I went confused, totally spaced. So I just pointed at the sign for stamps like a little kid. “Ehh mommy more juice in my sippie” luckily my faithful boyfriend by my side took my arm and credit card and finished my purchase and helped me out to the truck. These legs were done walking. You know because it was 10am and I had walked a whole 10 steps to the truck and 20 into the post office. (These boots were made for walking that’s just what they’ll do 😂)

i did manage to make some yummy banana almond spice pancakes with ham for dinner. No recipe needed 🙂 wish I would remember to write my recipes down.

I made my 12yr old young man take a pancake and piece of ham out with him as he ran to play with his friends. A few mins later my 13 yr old knight bust thru the door saying he heard the pancakes were banana and they were delicious! He needed one to go!!

Even though my day started out dark and sloth like it still had it bright and shining moments. Guess that’s what we live for right? 💙🍭

https://bloggersmeetup.wordpress.com/2016/03/11/weekend-wanderings

Welcome to narcolepsy

So recently I received a few messages asking how I have been and have the Drs been able to tell me anything new? Answering the question how have I been is always a difficult question to ask. I can always give the simple “I’m doing ok, could be better but you know lol or I could explain what’s really going on. But if I did explain what I was going thru would people know what I was talking about? Now don’t take that the wrong way, I’m not meaning that sarcastically or snobbish in the slightest. It’s just if I told you I had episodes of paralysis, episodes where I lose my speech , my ability to walk, hold my head up, sip water, even flip you off ? They can happen at the drop of a dime, any moment or I can just slowly fade out and be completely paralyzed for 24-36 hours. I can still hear you, I can still understand, for the most part, what’s going on around me. I just can’t move. It’s like being frozen in time. My brain disconnected from my body. My body asleep but my mind awake.

July 2013 I had a stroke and bounced back pretty well. 2 months later I made it back to work. Worked 2 days and ended up having a 2nd stroke. I didn’t bounce back from that one as fast. After almost a month in the hospital and numerous seizures I was released. I would still get seizures but they were your typical seizures. Other than a couple I have been able to hear and remember what happens around me during the seizures. I’ve even wrote a phone number during one. After 3 years of confusion, I’ll go into later, I was diagnosed with Narcolepsy with Cataplexy.

Yes narcolepsy is “that one where people just fall asleep.” It is a sleep disorder. My brain does not produce the chemical hypocretin. Just as others doesn’t produce dopamine.

Its about that time, this is what will be interesting about me writing a blog.. See how far I get with writing before I do fall asleep 😂 good night